Friday, October 14, 2016

Meet Sophie: I Can...

Today, let's celebrate another person with Down syndrome and their abilities.  


Meet Sophie:




Photo provided by Sophie's Mom


My name is Sophie. I'm 13 years old, I was born with Down syndrome, and I can perform! I've been on stage since I was five years old. I started with ballet dancing. When I was about nine, I started acting in this program called Detour Theatre Company. I've been in the musicals, Shrek, South Pacific and Happy Days - like the famous TV show. Every Christmas season, I do this dance performance called "The Snow Queen." I'm a good performer because I'm very social, I don't get nervous on stage (but I did when I was very, very little) and I have a good memory.  Now I'm in 8th grade and I'm in choir and cheerleading. Performing is my life! 




Thanks Sophie for sharing with us today!

To learn more about Sophie's family, check out: http://girlinapartyhat.com/.


This post is for Down syndrome Awareness Month where bloggers write for all 31 days of October for Trisomy 21. I am part of this 31 for 21 challenge. During the month of October, the NDSS asks that we celebrate people with Down syndrome and make others aware of abilities and accomplishments. Individuals with Down syndrome have abilities that need to be celebrated!


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Thursday, October 13, 2016

Meet Nate: I Can...

This week on the blog, we are celebrating and learning about the lives of people with Down syndrome for Down syndrome Awareness Month. Today, our guest writer is Cassandra as she shares about her son, Nate.

Meet Nate


Photo provided by Nate's family

This is Nate, and he can do many things!!!

Nate is 14 years old and a freshman in high school. Some of his favorite things to do are: go to the gym to work on his pull ups, singing, bowling, seeing the horses with our friend, laser tag, and mini golf.

However, the thing that Nate does the best is love people. He has never met a stranger, and often has hugs for the new friends he meets! He is a teacher of how to love. He sees no difference in any human, and freely welcomes all just as they are-the most important trait of God's love that we as "normal" people so frequently fail at. As his mom, I am repeatedly shocked by how quickly people accept him and his hugs! I have yet to see anyone offended, repulsed, or anything less than happy about his hugs! I truly believe he and his spirit of love are a gift from God.


Thanks for sharing, Cassandra. I hope I never meet Nate in a pull up contest!-Evana

This post is for Down syndrome Awareness Month where bloggers write for all 31 days of October for Trisomy 21. I am part of this 31 for 21 challenge. During the month of October, the NDSS asks that we celebrate people with Down syndrome and make others aware of abilities and accomplishments. Individuals with Down syndrome have abilities that need to be celebrated!
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Wednesday, October 12, 2016

Meet My Brother

Today, our guest post is written by Geraldine Renton. Geraldine lives in Ireland and is a well known writer in the blogging world. Usually, she writes about her life and raising a son with Hunter syndrome over at It's Me & Ethan but today she is sharing a sweet story about her brother with Down syndrome.


Meet My Brother "O"

Geraldine and "O" on his 40th birthday


“So, tomorrow, the eve of this Halloween, there is a fancy dress competition and a talent competition for you all to take part in. The funds raised will go towards the community centre,” the priest's voice bounced off the walls of the cold church.

“Can we go?” We nagged our parents as we left the church.

“Yes” mammy smiled, while our dad muttered something about 50 pence multiplied by six was no ‘cheap’ event for the kids, plus spending money, plus donation for the box, which no doubt the priest would have sitting by the entrance of the community centre…”yes guys ye can all go” he finally smiled when he saw the six of us had stopped and were trying to gage if it was a yes from his side or a rant. It was, as usual, both. Our father liked to tell us the cost of doing all these activities, but never said no, even though, having six kids in Ireland during the 1980s was not a ‘walk’ in the park.

The excitement built at home as we all tried to come up with great costumes; there is only so much you can do with a black plastic bag and a cheap plastic mask but we were in our element deciding if we should enter the talent competition too and if we did; would we do it all together or would we have a better chance if we split up?

My older siblings made their feelings crystal clear when we asked for their advice.

“I am going down to that centre to mind ye and hopefully laugh, I am not dressing up or entering a competition, I am too old for that crap,” my eldest sister, L, scoffed at the idea as she rewound her ‘New Kids on the block’ tape for the millionth time.

My older brother, also L, piped up, “I reckon O will win the talent comp, if he pretends no one is watching him. Lads we could actually bring home the top prize!”

L was the brother who always had the ‘plan’ but never liked to do much, just ordered us about- if you ever watched the ‘A-Team’, our brother L was very much the ‘Hannibal’ of our little family.

Our eyes widened at the thought of bringing home the top prize. We glanced over at O who was happily colouring his mountain of colouring books.

O is our eldest brother. O loves and I mean absolutely loves Michael Jackson. O can dance. O can dance really well especially to Michael Jackson. (Michael Jackson was huge in the 80’s especially his dance moves for ‘Smooth Criminal’ which our brother O, had learned off, thanks to the video he got the previous Christmas and the rewind and pause button.)

We spent the rest of the evening abandoning our own ‘talents’ and honing in on the one who had the talent, our big brother O.

The smell of Halloween was in the air as the six of us walked down to the community centre the following evening.

All we had to do was encourage O to dance like no one was watching.

The centre was full of Michael Jackson look a likes but we knew, O with his handmade sequined glove, his red Jacket (well, mammy’s red jacket), and his fedora hat (which we liberated from the back of dad's wardrobe and returned promptly later that evening) would help him stand out in the crowd.

Getting O to dance wasn’t as straightforward as we had hoped; in the end, we had to let him watch his Michael Jackson videos the following morning for as long as he wanted. We also had to promise to share our Halloween haul with him as he didn’t want to go ‘trick or treating’ anymore. We agreed to it all as our very own ‘Hannibal’ encouraged us to do so; telling us “It’ll all be worth it, when O wins the top prize.”

Easy for him to say, since he had no plans either to go ‘trick or treating’ as he was now far too old to at the ripe old age of 11.

O danced his heart out as Michael Jackson's ‘Smooth Criminal’ blasted over the speakers for the tenth time that night .

We stood watching him, a sense of pride coming over us, as we watched other children from our community finally accept our brother. They finally saw him...he was just like them only different.

I was only 7, but I could tell, as I watched the crowd, that it didn’t matter if O won or not; what mattered was that he was here and having fun, just like everyone else.

O finished, took a bow and walked away while the five of us followed behind.

O came in second.

We left that centre full of laughter and pride as we retold the story to our parents over and over about the time the whole community cheered for our brother as he danced his heart out.

O has literally been singing and dancing ever since! He is now in his 40’s, he still loves Michael Jackson, and can pop up at any point dressed up as the man himself ...he doesn’t wait for Halloween ...ain't he right?!

Thank you O for being you and for rocking that extra chromosome of yours so very well . You, mam and, dad gave me a fantastic understanding of ‘extra’ or ‘special’ needs so that I too, could help my son, many years later.

Uncle O with his nephew
Thanks Geraldine for sharing this story with us!  Evana


This post is for Down syndrome Awareness Month where bloggers write for all 31 days of October for Trisomy 21. I am part of this 31 for 21 challenge. During the month of October, the NDSS asks that we celebrate people with Down syndrome and make others aware of abilities and accomplishments. Individuals with Down syndrome have abilities that need to be celebrated!
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Tuesday, October 11, 2016

Meet Clayton: I Can...

Today, we are celebrating another person with Down syndrome for Down syndrome Awareness Month!

Meet Clayton


Photo provided by Clayton's family
This is Clayton, and he can dance! Clayton is 8 years old and in the second grade. Clayton loves being part of a local dance group through Jump, Leap, and Tumble gymnastics. Clayton enjoys rehearsing his dance steps, performing for crowds, and participating with his dance group in recitals. Clayton loves cheers from the crowd, especially when he plants a kiss on his sister's hand. Clayton does get nervous before his performances. He is able to calm his nerves and strut out on the dance floor when it's time to begin.

Clayton's parents are very proud of him for showing off his dancing skills. His mom says, "This is where he shines, and we love to watch the response that he gets from the crowd. It fills us with great joy and reminds us of how blessed we truly are."
Photo provided by Clayton's family


Photo provided by Clayton's family



This post is for Down syndrome Awareness Month where bloggers write for all 31 days of October for Trisomy 21. I am part of this 31 for 21 challenge. During the month of October, the NDSS asks that we celebrate people with Down syndrome and make others aware of abilities and accomplishments. Individuals with Down syndrome have abilities that need to be celebrated!
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Monday, October 10, 2016

Meet Benjamin: I Can...

For Down syndrome Awareness Month, my posts this week are featuring individuals with Down syndrome and their abilities. Today, I would like to welcome author Dana Hemminger as she shares about her son.


Meet Benjamin

Free To Be


Photo of Benjamin provided by his family



“Celebrate your son every day” were the wise words spoken to my husband and I from a dear friend during the first shaky weeks of our son Benjamin’s life. He was in the NICU, and we were trying to process his diagnosis of Down syndrome and multiple early health complications. That was over seven years ago, and my friend’s words continue to resonate within me. I have celebrated my sweet son and each new milestone that he has worked so hard to obtain. I have celebrated his smile, hugs, and contagious laughter. I have chosen to celebrate on the difficult days when grief over his delays and struggles tries to creep in. Overall, I have simply sought to enjoy my beautiful son.

As I contemplated what to write about Benjamin for this “I Can” series, I considered the different milestones I could highlight. I considered his daily activities and routines. However, I found my heart being pulled in a different direction. In honor of Down Syndrome Awareness month, I want to highlight and celebrate my son’s wonderful ability to be fully present in the moment and to be fully himself at all times. In his simplicity, Benjamin has no pretense. He is free to be himself and express himself in all places and with all people. He is able to experience the joy of the moment and to express his joy unhindered. He is able to delight in the simple things—a song, an embrace, a delicious meal (he loves to eat!), or spinning in circles until he gets dizzy, giggling all the way!

             We are all human be-ings, but in our society we seem to be more intent on the expectation to be human do-ings. When we meet a new person we don’t typically ask, “Who are you?” but “What do you do?” We find such identity in outward accomplishment instead of inward value. I value Benjamin for who he is, regardless of what he can do. There is much I can learn from my son and his profound simplicity. If only we were all more fully free to simply be!

Dana Hemminger lives with her husband Shawn and three amazing children Benjamin, Joelle, and Josiah in Northeast Oklahoma. She has authored two books: Reflections from Holland: A New Mother’s Journey with Down Syndrome and A Covenant Kiss, both available on Amazon.com. You can follow her blog at www.reflectionsfromholland.blogspot.com




This post is for Down syndrome Awareness Month where bloggers write for all 31 days of October for Trisomy 21. During the month of October, the NDSS asks that we celebrate people with Down syndrome and make others aware of abilities and accomplishments. Individuals with Down syndrome have abilities that need to be celebrated!
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Sunday, October 9, 2016

Meet Jaycee: I Can...

This week for Down syndrome Awareness Month, I will be featuring a person with Down syndrome to celebrate and showcase their abilities. There will be many fantastic guest writers this week as they share about a loved one in their life with Down syndrome!

I'll be kicking this "I Can" series off with my own child, Jaycee.

Meet Jaycee


Jaycee being baptized at our church

This is Jaycee, and she can be part of a church!

From an early age, my husband and I have always tried to include Jaycee in our faith. From attending church, to listening to Christian music, to reading Bible stories to her, and praying over her, my husband and I wanted Jaycee to know and understand our faith as much as she could. Jaycee is now 10 years old and in 4th grade.

As Jaycee has gotten older, our desire has been to see Jaycee be loved by a church family. We do not want people in a church to look at her as someone who needs healing or must be pitied. We want her to be embraced by a church body who is willing to see the perfect spirit inside of her. We found that Jaycee has been accepted and loved by our church at Crossroads.

Jaycee loves attending church with her family and friends. Jaycee will often start signing to me on Saturday, "Church?"

I remind her that church is the next day. Then, she will go to her closet and select a dress for church in anticipation of Sunday. Jaycee happily carries her Bible in to her class (Kidz Lab) and is greeted by peers who speak to her. Some have asked me how to say certain things in sign language, so they can communicate better with her.

We love to see Jaycee enjoy church and have friends there. But, we love to see her growing in the faith as well. Jaycee was baptized 2 years ago with support of our church body, and she now participates in communion. Although, I am sure she wonders why the portions are so small!

Jaycee praying with peers at church

Jaycee's church class leader, Becky, has this to share about Jaycee:
Oh how I wish every kid felt as free to worship the Lord as Jaycee does. I am not exaggerating when I say she captivates us all. What a leader! Jaycee loves to be on stage, and she doesn't miss a beat when it comes time to worship and dance. She has no idea the joy she brings to everyone in the Kidz Lab. We have several kids that argue over who is going to get to sit by her on any given week. It's like she has her own personal paparazzi that follow her around. She is so well behaved and loves to learn about Jesus as much as she loves to praise Him. She is also a great big sister. She loves to hug on Elijah any time he will let her in class.

We feel blessed that Jaycee can be part of a church just like her father, brother, and I.


This post is for Down syndrome Awareness Month where bloggers write for all 31 days of October for Trisomy 21. I am part of this 31 for 21 challenge. During the month of October, the NDSS asks that we celebrate people with Down syndrome and make others aware of abilities and accomplishments. Individuals with Down syndrome have abilities that need to be celebrated!

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Saturday, October 8, 2016

Down Syndrome-Web List

There are many wonderful websites that provide information about Down syndrome. I have made a small list of websites that I have personally used over the years. This is not an all inclusive list; these are just the ones I have referenced most often.

If you need more information on a topic with Down syndrome, check some of these out.


Organizations with general information and advocacy ideas:

The National Down Syndrome Society

The National Down Syndrome Congress

National Association for Down syndrome

Down Syndrome International

Global Down Syndrome Foundation


Websites for the newly diagnosed:

Down Syndrome Diagnosis Network

Down Syndrome Prenatal Testing

Brighter Tomorrows


Websites with developmental & health information:

DS-Health

Down syndrome Org

Talk-DS

Down Syndrome Education International


Have a website you think others should know about? Comment below. (Comments are moderated.)



This post is for Down syndrome Awareness Month where bloggers write for all 31 days of October for Trisomy 21. I am part of this 31 for 21 challenge. During the month of October, the NDSS asks that we celebrate people with Down syndrome and make others aware of abilities and accomplishments. Individuals with Down syndrome have abilities that need to be celebrated!

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