Showing posts with label travel tips. Show all posts
Showing posts with label travel tips. Show all posts

Thursday, August 11, 2016

Therapy Tip-Preparing Your Child for a New Experience

Today is Therapy Thursday-the day I share a tip based upon my experience as a pediatric speech-language pathologist and a mother of a child with special needs.

Today's tip is:

Preparing Your Child for a New Experience



Going new places and having new experiences always creates a little worry for me. My daughter has Down syndrome, an Intellectual Disability, and is minimally verbal, so sometimes new experiences are difficult for her to understand. I have learned that her behavior is better and her anxiety is less when she is well prepared for these new things.

The problem has been trying to explain new things to a child who is minimally verbal. Sure, I can talk all about the experience using words that I know Jaycee can understand. But, how do I really know she understands? Since she is minimally verbal, she is unable to ask questions to clarify things she does not understand. The conversation often seems one sided. I discover how well I have prepared her when we arrive at the new place and I can see how she reacts. At that point, it's often too late to do anything to help the situation.

Like many other children with Down syndrome, Jaycee is a visual learner. She responds well to videos and pictures to help her understand. This has become the most valuable way to help Jaycee understand new experiences and places. The internet and YouTube are extremely valuable tools.

Let me give you some examples of what I have done in the past to help Jaycee.

-When we made our first trip to Six Flags, I showed Jaycee many YouTube videos of the park and rides. As she watched the videos, I narrated what was happening and what she may see or do.

-In order to prepare Jaycee for a pageant for people with Intellectual Disabilities, I showed her all the pictures available online as I explained the idea of a pageant to her.

-When we go to our yearly Down syndrome events, I show her pictures from the previous year while I remind her of what happened before and may happen again.


Tips-
I do search for the right videos for Jaycee to watch prior to showing them to Jaycee. I don't want to waste time starting and stopping videos with her that aren't what I am looking for, so I do try to do some prep work on YouTube to find the ones that will help Jaycee best.

For Jaycee, I tend to prepare her a day or two before the new experience. The videos are good enough to teach her quickly. She usually does not need to watch a video over and over again to understand. If you feel like your child needs more time, you may need to start using these visuals well before your new experience.

If you are having trouble with your child in new experiences, then I suggest you give some of these visuals using the internet a try. There are many useful videos on YouTube that can help our children understand.
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Wednesday, May 21, 2014

Walt Disney World Tips For Families with Special Needs

A few months ago, we ventured down to Florida to visit the magical world of Disney. For months, I planned, worked with a travel agent, and made preparations. It is a little different traveling with a child with special needs, so I wanted to share some things I learned.

1st Character Meeting at Disney

 


1. If you are booking your room in a Disney World resort, do your homework. You'll want to read up on the amount of walking involved around your resort. We stayed at the Art of Animation because my son loves the Cars movie. There wasn't large distances to walk on this resort but you did have to walk for everything: catching the bus, going to the cafeteria, the laundry area, the arcade, the pool. There was "nothing" in the building with our room except other rooms. So, if you just wanted to fill your resort cup up with soda, you had to make the walk to the soda machines in the cafeteria. Still, I had read up about the resort and was prepared.

2. Usually when I vacation, I ask for a room on the first floor to make it easier for Jaycee and us. A bi-pap machine, nebulizer, vest airway clearance system, and distilled water are just some of the extra stuff we have to lug around. I forgot to ask for a first floor room at Disney and I wish I would have. Don't make my mistake. Every step counts at Disney!

3. Strollers or wheelchairs are a must if your child cannot walk long distances. My child cannot walk too far or stand in one spot for very long, so our stroller was a necessity. The walk from our room to the bus stop would have done Jaycee in if we made her walk it! Jaycee has had a "medical stroller" for a few years now, so we didn't have to buy anything extra for the Disney trip. Again, there is a lot of walking on a Disney trip so keep this in mind. There are stroller rental places in Orlando that offer free delivery or you can rent something at the park as well.

4. If your child has a disability or conditions that make it difficult for he/she to stand in line, you can get your child a Disability Access Service Card. When we went in Feb. 2014, it worked like this: We went to Guest Relations within the first park we visited in order to sign up for this card. We were not asked for any documentation to prove a disability existed. But Jaycee does have Down syndrome and was sitting in her stroller, so this may have been enough proof. They took her picture which printed on a card we carried around for the rest of our stay. When we found a ride or a character meeting that we wanted to do, we presented the card to the ride attendant. The ride attendant wrote down on the card a time for us to return back so that we could get on the ride without waiting. Usually, they cut the wait time in half. For example, if the current waiting time was 1 hour, then they would instruct us to be back in 30 minutes. When we returned, everyone in our party was allowed to "cut" the line using the fast pass entry and go straight in.
There are a couple of rules. First, the person with the disability must ride the ride to use the card. In other words, my husband couldn't sign up to ride a roller coaster with this pass since Jaycee couldn't ride it. Secondly, you can only sign up for one ride at a time. This was not a big deal for us since we used this card in combination with the 3 fast passes we were allowed with our package each day.
Disney has made a lot of changes to this program due to abuse of system. I found this process to be extremely helpful and accommodating. Before we stopped for lunch, we would sign up for a ride. Or, we could sign up for a ride and take a restroom break or do a little shopping. We appreciated the fact that we didn't have to wait in line with Jaycee. She truly couldn't have stood it and it saved us some stress.

5. If your child does use a medical stroller, you will want to get a special tag for it while you are at Guest Relations. This red tag indicates the stroller is the equivalent of a wheelchair. There are a few places where strollers are not allowed, so this tag will allow you to take your stroller everywhere. Otherwise, you will be stopped! After the first day, Jaycee was tired so we started keeping Jaycee in her stroller in line. This tag allowed us to do that. Jaycee in lines=us wrestling her to either stay with us or to stand up  The stroller red tag was a necessity for us!

6. If you make reservations at a Disney eatery, expect delays. I wrongly assumed that we would be taken to our table at our reservation time. The buffet reservations were usually on time. The rest of the reservations were 15-30 minutes off. I wasn't expecting this. Some days, I planned later than normal meals but they ended up being really later than normal meals.

7. Don't be afraid to try new things. I wasn't sure if Jaycee would hate the character meetings or love them, but I gave it a try. Success! I wasn't sure how the evening electrical parade would be received either. Success! My husband wanted the kids to try a water ride for the first time. No success there for either kid but it made a good story! We tried a 3D movie for the first time at a Disney park. Jaycee sat in the floor with her face covered but Elijah liked it! Petting a snake? Jaycee did that too! As for the fireworks (which Jaycee cries at every 4th of July), we weren't brave enough to try that. Still, we found that Jaycee was really willing to try new experiences at Disney. We left with so many special memories.

Overall, I found Disney to be very accommodating of those with disabilities. We are hoping to get back there one day!

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