I'm honored to have author, speaker, mother, and advocate-Mardra Sikora- as a guest writer here today!
“What is your goal?”
The keynote speaker, Dakota Johns, asked. Then he
asked us to share this goal with those sitting around us. One person at our
table said, “To write a book,” another said, “Take a family vacation.” My son,
Marcus, said, “To win a Tony Award.”
This is the first I’ve heard Marcus articulate
this specific goal, although it didn’t surprise me. It may have surprised the
others at the table. Then again maybe not, because Dakota Johns, the young man
giving the keynote about how to achieve your dreams, has Down syndrome, as does
Marcus.
Both of them have faced challenges and both of
them have big dreams. Dakota is giving
speeches around the country and Marcus has already
published his first storybook for children, Black Day: The
Monster Rock Band. So why not?
Why not a Tony Award?
After all, Marcus has
been working on writing for Broadway for, well, about as long as I can
remember. Plus, this year’s Tony Awards seemed to speak directly to aspiring
young people, by repeatedly spotlighting two things: possibility and
support.
From the opening number, which focused on the idea
of a young boy and his dreams, to the diversity of performers both featured and
nominated. The awards were a welcome breath of reach. The theme that no matter
who you are, in this realm, your dreams are possible, frankly brought me to
tears. Tears of recognition for the possible.
The other common theme was support. This came
from two very different places in our communal experience. The first because
the Tony Awards were held on Sunday June 12th, the day our country
reeled from the horrific massacre in Orlando. Frank Langella’s acceptance
speech included, “Today in Orlando, we had a hideous dose of reality. I urge
you, Orlando, to be strong, because I’m standing in a room full of the most
generous human beings on Earth, and we will be with you every step of the way.”
Lin-Manuel Miranda,
an icon worth emulating, accepted his award with a sonnet that included, “We
live through times when hate and fear seem stronger. We rise and fall and light
from dying embers remembrance that hope and love last longer. And love is love
is love is love is love is love…”
This support as a
community, a palpable and essential social consciousness, encourages healing
and growing and improving.
The other kind of support that was evident was the
personal support that winners acknowledged. Daveed Diggs recounted
that, “My mom gave me permission to do something that everyone else wasn’t
doing and my dad supported me and made it possible, and I think a lot of us are
here because people in our lives did that.”
Thomas Kail said,
“I’m here because so many people said, ‘Why not this?’” He also reminded
us all to keep telling stories.
SO WHY NOT THIS?
That is a way of thinking that Marcus embraces.
He’s not afraid to try what he loves. He’s not afraid to visualize his dreams.
He’s not afraid of failure and, more importantly, he’s not afraid of success.
He says, “Alright, I’ll try.”
The thing is, there are very few winners without a
team.
Acceptance speeches go on because there are so
many people who are part of the “winner.” Olympic medalists do not get to the
podium alone. Because Marcus has an intellectual disability, assumptions are
more often made about his “cant’s” than his “cans” – which is a shame, because
his talents are valid and beautiful and deserve to be celebrated. Everyone
needs a team; everyone needs support, that does not discount what each person
can and does with their own talents.
So, back to Marcus’ goal to win a Tony. Can a
Person with Down Syndrome win a Tony Award?
If it’s his dream, then why not?
WHY THE HECK NOT?
This is a slightly revised post
originally published by Mardra Sikora on GrownUpsAndDowns.com. Since this post originally “aired” I’d like to note that we
have a few friends with Ds who have won Emmy’s, so…there ya go.
Thanks for sharing, Mardra! I hope he achieves his goal!- Evana
This post is for Down syndrome Awareness Month where bloggers write for all 31 days of October for Trisomy 21. I am part of this 31 for 21 challenge. During the month of October, the NDSS asks that we celebrate people with Down syndrome and make others aware of abilities and accomplishments. Individuals with Down syndrome have abilities that need to be celebrated!
Thanks for inviting and sharing our story!
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