That is the sort of philosophy that my husband and I try to live by. We have been blessed by the help of many organizations over the years since having our daughter with Down syndrome. Therefore, we try to give back when we can. For instance, we held a used book and movie drive a few years ago for our local Children's hospital. We have often financially donated to the Ronald McDonald Charities in St. Louis because we have benefited from their charity. But, the organization we support most frequently (besides our local church) is the Down syndrome Association of Greater St. Louis (DSAGSL), which is the Down syndrome organization that was first on the scene after our daughter's diagnosis.
The DSAGSL holds a team fundraising challenge each year to raise funds for the organization. In 2007, we formed a team, Jaycee's Gift, and raised money for them for the first time. She was 1 year old at the time.
First Down syndrome walk in 2007 -page from scrap book |
Since then, we have fundraised for the DSAGSL in one capacity or another except for 2009 when Jaycee had a surgery scheduled, and we were preparing for the birth of our son. I'm not sharing this to brag on ourselves, but to stress that we support things we believe in. We are grateful for our friends, family, and community members who have given to our team or attended our different fundraisers. The last few years we have been especially grateful for our local Dairy Queen who agreed to a public one-night fundraiser, which has helped get the word out in our community.
Scrap book page from DSAGSL fundraising event in 2011 |
Which brings me to the story of Jaycee meeting Yadier....
For years, the DSAGSL has a "Walk in the Park" event at Busch Stadium, which is home to the St. Louis Cardinals. The fundraising teams can walk around the warning track of baseball field prior to a game. The top fundraisers for the DSAGSL are invited to participate in a starting line up with the Cardinal's baseball players at this game too.
This year, we were super excited when the Down syndrome Association of Greater St. Louis sent us an email alerting us that Jaycee had won a starting line up position.Yay! The top fundraisers are automatically given a position in the starting line up but there are a few positions raffled off among the other fundraisers. Jaycee was one of the children who won a drawing among those who raised funds to receive a starting position.
This year, we were super excited when the Down syndrome Association of Greater St. Louis sent us an email alerting us that Jaycee had won a starting line up position.Yay! The top fundraisers are automatically given a position in the starting line up but there are a few positions raffled off among the other fundraisers. Jaycee was one of the children who won a drawing among those who raised funds to receive a starting position.
A few weeks ago, many of Jaycee's family and friends attended that game to support her.
After the walk around the warning track with our team, Jaycee and my husband were sent to the holding area for those who were participating in the starting line up. The rest of us took our seats with our cameras all ready for that magical moment.
Jaycee and the other children with Down syndrome participating had their names announced and were given a position on the field.
Jaycee meeting Fred Bird |
Jaycee was at home plate, which meant she would be meeting Yadier briefly before the game started. But first, Derrick May the assistant batting coach for the Cardinals signed a ball for Jaycee. Then Jaycee smiled for pictures of her with May and all the umpires at the game.
Then Yadier ran out and asked Jaycee if he had a ball for him to sign. Jaycee handed her ball over. Jaycee was all smiles and babbled as she looked his baseball uniform over.
The Magical Moment of the ball signing |
Then Jaycee decided she needed to sign her name on the baseball too! I guess writing on a baseball looked fun!
As all of this took place, those of us in the stands watched the big screen and cheered for our Jaycee as she left the field with a baseball and a big smile.
There have been many moments like this over the years when I shake my head in disbelief thinking, "My life is too good to be true!" I never would have imagined this moment would happen 10 years ago when I sat in the NICU wondering if Jaycee would survive her open heart surgeries and what her future held.
Her life has been good and has been full despite any labels attached to her. These special experiences make her life even more amazing, and my husband, son, and I get to experience it with her!
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